Navigating the Overlap of PFD and ARFID
Published by Jaclyn Pederson, MHI on Aug 29, 2024
Dear Friends of Feeding Matters, At Feeding Matters, our work has always been to support families of children with pediatric feeding disorder (PFD) and the professionals who care for them. As part of thisRead full post…
The challenges and triumphs of breastfeeding with PFD: Addressing common concerns and offering expert advice
Published by Feeding Matters on Aug 12, 2024
For a function that’s so natural, breastfeeding is surprisingly difficult for many new mothers and infants. Feeding challenges, like reflux, oral aversion or even dysphagia, can make breastfeeding feel insurmountable.Read full post…
The silent struggle of PFD: Why the prevalent pediatric disorder continues to be under-diagnosed and under-discussed
Published by Amy Delaney, PhD, CCC-SLP on
For a pediatric disorder that affects 1 in 37 children under age 5 –– making it more common than autism –– pediatric feeding disorder (PFD) remains significantly misunderstood and undiagnosed.Read full post…
Adapted baby-led weaning: A game-changer for pediatric feeding disorder
Published by Jill Rabin, CCC-SLP/L, IBCLC on Aug 09, 2024
When I first introduced adapted baby-led weaning to the family of a 10-month-old girl with complex medical needs, her doctor and extended relatives were skeptical. Complications from Down’s syndrome meantRead full post…
Navigating pediatric feeding disorder in rural America: One mom’s journey
Published by Feeding Matters on Aug 08, 2024
For any mother wishing to escape to a beautiful, rural island, Leilani Kailiawa will attest to that fantasy’s challenging reality –– especially as a mom of a child with pediatricRead full post…
Dysphagia and PFD: Understanding and treating swallowing challenges in children
Published by Pamela Dodrill, PhD, CCC-SLP on Aug 06, 2024
Considering the complexities of swallowing, it’s a wonder most babies are born knowing how to feed. Those who struggle with feeding may be diagnosed with dysphagia, which is the medicalRead full post…
MY PFD JOURNEY: JAX
Published by Amber Mieras, Family Advisory Council Chair on Jun 29, 2024
Meet Amber and Jax Mieras. Amber is the Pillar Chair for Family Support and is also the devoted mother to nine-year-old Jax, who has Down syndrome. We invite you toRead full post…
Feeding is a Journey
Published by Jaclyn Pederson, MHI on Jun 28, 2024
Dear Friends of Feeding Matters, At our recent board meeting, our Family Advisory Council (FAC) chair Amber described to board leadership how our council members were feeling. Our FAC isRead full post…
The anatomy of a swallow: The complex process that can challenge children with PFD
Published by Georgia A. Malandraki, PhD, CCC-SLP, BCS-S, F-ASHA on Jun 12, 2024
The process of swallowing that most people take for granted is a remarkably intricate series of sensory and motor events. Developing effective treatments to support children with pediatric feeding disorderRead full post…
Celiac disease and PFD : A guide to navigating both diagnoses
Published by Feeding Matters on May 23, 2024
When a child with pediatric feeding disorder (PFD) is also diagnosed with celiac disease, adjusting to a gluten-free diet can be even more challenging than usual. Keeping a child withRead full post…
7 tips for SLPs to improve support for children with PFD and their families
Published by Stephanie Cohen, M.A., CCC-SLP, CLC on May 15, 2024
The perspective on feeding therapy from a speech-language pathologist When a child struggles with eating or eats differently than parents expect, it impacts the entire family. That’s because eating isRead full post…
Navigating postpartum depression and pediatric feeding disorder
Published by Jena Fisher, PhD on
As a mom of two, I experienced firsthand the profound impact of pediatric feeding disorder (PFD) on a family. When I learned about pediatric feeding disorder and Feeding Matters, myRead full post…
Self-care tips: Advice from a psychologist specifically for parents of children with PFD
Published by Rose Phillips, MA, LMFT on
Therapy sessions, physician visits and feedings that suck up every minute of your day leave parents of children with pediatric feeding disorder (PFD) little time for self-care. While a walk,Read full post…
Lessons from a career in occupational therapy feeding education and research
Published by Paula Rabaey, PhD, MPH, OTR/L on Apr 22, 2024
Paula Rabaey, PhD, MPH, OTR/L, has seen firsthand how research can improve patients’ lives worldwide over her 30 years in occupational therapy (OT). Dr. Rabaey, an associate professor at theRead full post…
Learning to Breathe
Published by Athena Flicek on Apr 10, 2024
I could feel my blood pressure rising. You might wonder if I was about to run a race or perform a medical miracle. All I was doing was sitting atRead full post…
PFD Story- Baking with the Besties
Published by Christina Van Ditto on Mar 28, 2024
As parents of children with medical complexities and special needs, we parent as clinicians. We are responsible for care and carryover that often resembles a therapeutic and medical model. WhenRead full post…