MY PFD JOURNEY: JAX

Published by Amber Mieras, Family Advisory Council Chair on Jun 29, 2024

Meet Amber and Jax Mieras. Amber is the Pillar Chair for Family Support and is also the devoted mother to nine-year-old Jax, who has Down syndrome. We invite you toRead full post…

Feeding is a Journey

Published by Jaclyn Pederson, MHI on Jun 28, 2024

Dear Friends of Feeding Matters, At our recent board meeting, our Family Advisory Council (FAC) chair Amber described to board leadership how our council members were feeling. Our FAC isRead full post…

The anatomy of a swallow: The complex process that can challenge children with PFD

Published by Georgia A. Malandraki, PhD, CCC-SLP, BCS-S, F-ASHA on Jun 12, 2024

The process of swallowing that most people take for granted is a remarkably intricate series of sensory and motor events. Developing effective treatments to support children with pediatric feeding disorderRead full post…

Celiac disease and PFD : A guide to navigating both diagnoses

Published by Feeding Matters on May 23, 2024

When a child with pediatric feeding disorder (PFD) is also diagnosed with celiac disease, adjusting to a gluten-free diet can be even more challenging than usual. Keeping a child withRead full post…

7 tips for SLPs to improve support for children with PFD and their families

Published by Stephanie Cohen, M.A., CCC-SLP, CLC on May 15, 2024

The perspective on feeding therapy from a speech-language pathologist When a child struggles with eating or eats differently than parents expect, it impacts the entire family. That’s because eating isRead full post…

Navigating postpartum depression and pediatric feeding disorder

Published by Jena Fisher, PhD on

As a mom of two, I experienced firsthand the profound impact of pediatric feeding disorder (PFD) on a family. When I learned about pediatric feeding disorder and Feeding Matters, myRead full post…

Self-care tips: Advice from a psychologist specifically for parents of children with PFD

Published by Rose Phillips, MA, LMFT on

Therapy sessions, physician visits and feedings that suck up every minute of your day leave parents of children with pediatric feeding disorder (PFD) little time for self-care. While a walk,Read full post…

Lessons from a career in occupational therapy feeding education and research

Published by Paula Rabaey, PhD, MPH, OTR/L on Apr 22, 2024

Paula Rabaey, PhD, MPH, OTR/L, has seen firsthand how research can improve patients’ lives worldwide over her 30 years in occupational therapy (OT). Dr. Rabaey, an associate professor at theRead full post…

Learning to Breathe

Published by Athena Flicek on Apr 10, 2024

I could feel my blood pressure rising. You might wonder if I was about to run a race or perform a medical miracle. All I was doing was sitting atRead full post…

PFD Story- Baking with the Besties

Published by Christina Van Ditto on Mar 28, 2024

As parents of children with medical complexities and special needs, we parent as clinicians. We are responsible for care and carryover that often resembles a therapeutic and medical model. WhenRead full post…

Nutrition education in schools: A teacher’s reflections

Published by Gabi Lake on Mar 21, 2024

Recently, I heard first-hand from a PFD Parent about how challenging it is to navigate feeding differences within the school system. She shared that her child came home saying thatRead full post…

Budget-friendly bites: Navigating picky eating challenges in less time

Published by Courtney Bliss on Mar 19, 2024

When parenting a picky eater, we have to discard much of what we learn about food as adults. Diet recommendations to eat a lot of protein, avoid carbs and stayRead full post…

Living our Values: Collaborative, Innovative, Inclusive

Published by Jaclyn Pederson, MHI on Feb 29, 2024

As I sit down to pen my thoughts to share with you this month, the importance of trust within our community is top of mind. Your trust in us isRead full post…

Insider insights: Preparing for your child’s G-tube journey

Published by Feeding Matters on Feb 26, 2024

What to expect before and after your child’s G-tube insertion So, you’ve finally decided to get a G-tube for your child. Arriving at this point in your child’s feeding journeyRead full post…

Building a care team for PFD

Published by Erin Ross, PhD, CCC-SLP, CLC on

In Washington state, every child supported by early intervention (EI) for pediatric feeding disorder (PFD) is treated by a team that includes a nurse, dietitian and a speech and languageRead full post…

Feeding Matters Approved for a $240,000 Engagement Award to Launch the Family-Centered Pediatric Feeding Disorder Research Consortium

Published by Feeding Matters on

This project will focus on recruiting patient and family consortium members and leaders, training them on research fundamentals and the state of PFD research, establishing consortium governance, and then buildingRead full post…

1 2 3 16