Are you a parent or caregiver navigating the complexities of Pediatric Feeding Disorder (PFD)? If so, you’re not alone. As a parent of two children facing these challenges, I intimately understand the hurdles that come with this condition. I’m thrilled to share an exciting opportunity that could reshape the future for families navigating PFD – the Feeding Matters Family-Centered PFD Research Consortium.
Understanding the Landscape
Feeding Matters, an organization close to my heart, is a world leader in the PFD field. Having actively volunteered and chaired the Family Advisory Council, I’ve witnessed firsthand their dedication and impact. Now, the Feeding Matters is taking a significant step forward with the Feeding Matters Family-Centered PFD Research Consortium.
A Personal Stake in Progress
As a parent deeply involved in this initiative, I am serving as the Primary Family Stakeholder Consultant. Leveraging my personal experiences, I’m working to ensure that the Consortium’s efforts authentically reflect the needs and perspectives of families like ours. This unique approach, engaging PFD families from the beginning, underscores Feeding Matters’ commitment to family-driven care and patient-centered research.
Consortium Goals Aligned with Transformation
The Consortium’s objectives are essential for progress. From member training to consensus on research priorities and sustainable engagement, each goal aligns seamlessly with the mission and values of Feeding Matters. Joining the Feeding Matters Family-Centered PFD Research Consortium means contributing to transformative PFD research and improving outcomes for our children and families.
Join the Movement
This Consortium is more than a research initiative; it’s a beacon of hope, empowerment, and collaboration. By participating in a research project, you contribute valuable insights that will use to develop more effective therapies, diagnostic tools, and support systems for families navigating the complexities of PFD. Your involvement can drive positive change in the lives of countless children and their parents.
By becoming a part of this vital endeavor, you’re actively contributing to a movement that has the potential to redefine the future for families dealing with PFD.
How can get involved?
- Become a Consortium Member: Join a community of parents, caregivers, and advocates dedicated to making a difference in the PFD landscape.
- Spread the Word: Share this opportunity with your network. The more families we involve, the greater the impact.
- Stay Informed: Subscribe to Feeding Matters updates to stay informed about the consortium’s progress and other PFD-related developments.
- Connect on the Feeding Matters App.
Join me and countless others in supporting the Feeding Matters PFD Research Consortium. Together, let’s unlock hope, drive empowerment, and foster collaboration. We can contribute to a brighter and more informed future for our kids.
For more information and to join the Feeding Matters Family-Centered PFD Research Consortium, visit feedingmatters.org/consortium