Advocacy Pillar
The PFD Alliance’s advocacy pillar facilitates global change to improve the lives of children with pediatric feeding disorder – including a stand-alone diagnosis, government awareness, and inclusive insurance coverage.
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Advocacy Projects & Outputs
PFD & ARFID
The Advocacy Committee is engaging experts in the feeding skill and psychology domains to ensure the best care for children with PFD, ARFID, or both. View PFD & ARFID resources here.
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PFD Awareness Month
Feeding Matters holds PFD Awareness Month each May to raise awareness and advocate for earlier identification. Learn more about the month.
Early Intervention Crosswalk
Early identification and management of pediatric feeding disorder (PFD) plays a pivotal role in improving long-term outcomes for both families and children. Learn more about the state of early intervention services and join the campaign to advance the service landscape for PFD.
Infant & Child Feeding Questionnaire (ICFQ) Screening Pilot
Made possible by grant funding from Del E Webb, the ICFQ 6-question screening pilot was implemented in partnership with an Arizona pediatric clinic serving families who may be at risk for PFD.
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Pediatric Feeding Disorder Consensus Paper
In March 2016, Feeding Matters gathered some of the world’s most renowned thought leaders in pediatric feeding to determine a name, definition, and diagnostic criteria for pediatric feeding disorder. The result of this pivotal meeting was two years of collaborations and diligent work to write “Pediatric Feeding Disorder: Consensus Definition and Conceptual Framework.” Published by the Journal of Pediatric Gastroenterology and Nutrition in January 2019, the paper declares pediatric feeding disorder the unifying name and stand-alone diagnosis for the field.
The Theory of Change is an adaptive framework utilized by Feeding Matters and the PFD Alliance to remain nimble with the ability to adjust and pivot as the landscape for pediatric feeding disorder continues to shift and transform. An ever-evolving map, the Theory of change identifies main objectives and potential pathways to promote social change for PFD. Once items are identified, they are researched and tested through a lean innovation process before they are integrated into Feeding Matters’ strategic plan. View the framework.