Helping Families with Feeding Since 2006
Inspired by their newborn triplets’ struggle to eat, Shannon and Bob Goldwater founded the Parent Organized Partnerships Supporting Infants and Children Learning to Eat (P.O.P.S.I.C.L.E.) Center in 2006 to help children with feeding disorders and create a support system for families. Born 14-weeks early, and each weighing a little over one pound, the Goldwater triplets spent their first four months in the neonatal intensive care unit (NICU).
Once released, each child struggled to eat, and all would choke, cough, and gag during mealtimes. All three would eventually require feeding tubes to supplement their nutrition.
Feeding Matters has accomplished a great deal since its inception as P.O.P.S.I.C.L.E. Center in 2006. We remain committed to uniting the healthcare community with families to improve care for children with pediatric feeding disorder (PFD). We remain devoted to continuously seeking innovative ways to reach the children who need us most.
- Goldwaters established the P.O.P.S.I.C.L.E. Center and provided the initial seed funding
- Founding Medical Professional Council created
- Monthly parent support groups began
- 2,700+ hours were donated by four parent volunteers
- 18 feeding experts gathered for the first official meeting of the Founding Medical Professional Council
Group identified the importance of a screening tool, and members began work on what would eventually become the flagship Infant and Child Feeding Questionnaire©
Focus expanded to national outreach, community advocacy and awareness, and developing educational activities for both parents and professionals
Established a regularly convening Board of Directors
Co-hosted the Pediatric Feeding Disturbances conference
Launched ten-month series of educational workshops for healthcare professionals and families
Formed the Community Advisors board
Medical Professional Council developed the Infant and Child Feeding Questionnaire©
- Offered first educational webinar, which focused on the importance of a team approach in caring for children with pediatric feeding disorder
- P.O.P.S.I.C.L.E Center won both the Investee and Mentor’s Choice Awards at Social Venture Partners of Arizona’s inaugural Fast Pitch event, a prize totaling $122,500 towards building the capacity of the organization
- Initial parent support groups evolved into the Power of Two mentoring and support program. This expanded capacity allowed families worldwide to begin receiving the help and hope they need
P.O.P.S.I.C.L.E. Center was rebranded as Feeding Matters, though the organization’s purpose remained the same — making a better world for children with pediatric feeding disorder
The Virtual Health Resource Platform launched on the new Feeding Matters website, allowing worldwide access to the provider directory, video libraries, and other digital educational resources
- Over 600 people attended the 4th Pediatric Feeding Conference. These in-person and virtual participants represented ten countries and a wide variety of disciplines
- Work began on the pediatric feeding disorder Advocacy and Early Intervention Model (AIM), Feeding Matters’ model to transform the system of care for children nationwide
Internationally renowned feeding experts began to define the scope and definition of pediatric feeding disorder
- Pilot research showing that a subset of Feeding Matters’ Infant and Child Feeding Questionnaire© significantly distinguishes a pediatric feeding disorder was published in the Journal of Pediatric Gastroenterology and Nutrition
- Launched three-year, $3 million Power of a Name campaign supporting the widespread acceptance and awareness of pediatric feeding disorder
- The groundbreaking consensus paper declaring pediatric feeding disorder (PFD) the unifying name and stand-alone diagnosis for the broad spectrum of pediatric feeding struggles is formally published in the Journal of Pediatric Gastroenterology and Nutrition
- In August, the CDC shared that PFD will have a diagnostic code in an upcoming edition of the US ICD-10, finally bringing validation for families and professionals.
- 2nd phase of the Infant and Child Feeding Questionnaire Research published in the Journal of Pediatrics.
- Served as the catalyst to the research that showed that more than 1 in 37 children have PFD.
- 4 state’s Governors declared a PFD Awareness Month.