Facilitating Global Change
Historically, pediatric feeding disorder (PFD) has been significantly underserved and misunderstood. In collaboration with respected clinicians, researchers, caregivers, educators, healthcare professionals, and more, the PFD Alliance’s advocacy pillar facilitates global change to improve the lives of children with pediatric feeding disorder – including a stand-alone diagnosis, government awareness, and inclusive insurance coverage.
PEDIATRIC FEEDING DISORDER CONSENSUS PAPER
Lacking a universally accepted medical definition or stand-alone diagnostic code locally, nationally, or globally, families navigating PFD often struggle to find effective evaluation and treatment while fighting to receive coverage or financial reimbursement from their health insurance. Meanwhile, doctors and allied healthcare professionals are left to source specific education on their own while battling similar funding and coverage challenges with insurance companies.
In 2015, Feeding Matters began work to identify and define a universally accepted name and stand-alone diagnosis. In March 2016, 17 various disciplines and some of the world’s most renowned thought leaders in pediatric feeding struggles gathered to determine a name, definition, and diagnostic criteria. The result of this pivotal meeting was two years of collaborations and diligent work to write “Pediatric Feeding Disorder: Consensus Definition and Conceptual Framework.” Published by the Journal of Pediatric Gastroenterology and Nutrition in January 2019, the paper declares pediatric feeding disorder the unifying name and stand-alone diagnosis for the field.
PFD AWARENESS MONTH
In order to bring about awareness to PFD as its own condition, Feeding Matters sought to create an awareness month for PFD as part of its advocacy and education efforts to influence systemic change in healthcare for children with PFD to improve early identification, appropriate referrals, and access to interventions. In 2021, Feeding Matters moved PFD Awareness Month from December to May to gain greater recognition for this issue for years to come
Utilize the PFD Awareness Month Toolkit to spread the word about PFD. You will find an easy to share media kit with engaging graphics and current information on PFD. You also will find a PowerPoint presentation, entitled “What is PFD?” to be shared with those new to PFD.
THE THEORY OF CHANGE
The Theory of Change is an adaptive framework utilized by Feeding Matters and the PFD Alliance to remain nimble with the ability to adjust and pivot as the landscape for pediatric feeding disorder continues to shift and transform. An ever-evolving map, the Theory of change identifies main objectives and potential pathways to promote social change for PFD. Once items are identified, they are researched and tested through a lean innovation process before they are integrated into Feeding Matters’ strategic plan.