Tell us a little bit about yourself and what you do.
I am an occupational therapy student at the University of Puget Sound in Washington state and I am the mother of a 10 year old with a PFD.
What motivated you to become involved with Feeding Matters?
When my daughter was born premature and needed a feeding tube to eat, I felt very alone and scared. Through the internet, I found other families who knew what I was going through and helped me through the darkest times. A few years later, I found Feeding Matters and knew it was time for me to give back and start helping others as I had been helped.
How have you volunteered with Feeding Matters?
I have been a family coach for about 6 years. I have also worked on several editing projects for Feeding Matters, the latest one being the Family Guide. I am so excited about it and think it is a great resource for families!
What has been your favorite part of volunteering with Feeding Matters?
I have loved connecting with other families and learning from them. It is a wonderful community helping each other to navigate the confusing, often scary, world of PFD.
What sets Feeding Matters apart from other organizations?
I don’t know that other organizations don’t do this, because I am not involved in other organizations, but everyone at Feeding Matters is very easy to reach out to and talk to and they really care about the families they are serving. And EVERYONE understands the challenges that come with PFD! It is wonderful to talk to people without first having to explain what you are experiencing.