“We weren’t entirely sure of the plan”: Caregivers’ Experiences and Recommendations of Having a Child with a Temporary Feeding Tube

April 13, 2023 12:15 pm

Presentation Summary

This presentation describes the results of an open-ended survey completed by caregivers of children with a temporary feeding tube from an Australian tertiary children’s hospital. The caregivers’ experiences and recommendations are analysed, providing insight into their perspectives and the advice they would give to other caregivers in the same situation.

Learning Objective

Appraise the management of temporary tube feeding in children to ensure it is consistent.

Speakers

  • Claire Reilly

    Claire Reilly RD, BSc, MSc, PhD Candidate

    Claire Reilly is a senior pediatric dietitian at the Queensland Children’s Hospital, Brisbane, and a PhD candidate at the University of Queensland. Claire is a member of the Queensland Children’s Hospital interdisciplinary feeding clinic and her research focuses on the management of tube feeding in children.

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  • Maryanne Syrmis

    Maryanne Syrmis SLP

    Maryanne Syrmis is one of the Advanced Speech Pathologists in Outpatients at the Queensland Children’s Hospital, Brisbane, Australia and holds an Honorary Fellow position at the Child Health Research Centre, University of Queensland. She predominately works in the Queensland Children’s Hospital Interdisciplinary Feeding Clinics and has a graduate certificate in Health Services Management from the University of Technology Sydney.

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  • Nadine Frederiksen

    Nadine Frederiksen OT

    Nadine Frederiksen is a Clinical Lead Occupational Therapist at the Queensland Children's Hospital, Brisbane, Australia and holds an Honorary Fellow position at the Child Health Research Centre, University of Queensland. Nadine specialises in working with children presenting with significant feeding difficulties on the background of complex medical issues. Working within an Interdisciplinary feeding team, she has completed research in the management of temporary tube feeding, including tube weaning practices, with several peer reviewed papers published.

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  • Jeanne Marshall

    Jeanne Marshall PhD, B. Sp. Path.

    Jeanne Marshall is a speech pathologist with expertise in pediatric feeding and swallowing. She is currently employed in a conjoint role between Children's Health Queensland Hospital and Health Service and The University of Queensland. Jeanne’s research interests include pediatric feeding disorders and dysphagia, telepractice, education, and simulation. Jeanne also has a passion for research translation and building research capacity in the health workforce.

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  • Rebecca Nund

    Rebecca Nund PhD, SLP

    Rebecca Nund is a Lecturer and Early Career Researcher in the School of Health and Rehabilitation Sciences, Faculty of Health and Behavioural Sciences. She is an affiliate of the Centre for Functioning and Health Research (CFAHR). Rebecca has received over 2.2M in research fundings and published over 30 research articles and book chapters. The focus of her program of research is on partnering with patients, families and health professionals to understand their experiences to inform health service change. She is a speech pathologist with a special interest in swallowing disorders, head and neck cancer, and qualitative research.

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  • Kristie Bell

    Kristie Bell PhD, RD

    Kristie Bell has been an accredited practicing dietitian for over 20 years. She is currently the Acting Director of Dietetics and Food services at Children’s Health Queensland and holds honorary research appointments with the University of Queensland, Griffith University and the Queensland University of Technology. As a clinician researcher, Kristie’s research interests include topics with direct clinical relevance and impact for improving the health of children and their families. Her research has focused on nutrition, physical activity, growth and health for children with cerebral palsy, and in the nutrition screening and assessment of children with different clinical conditions. Most recently, her current research involves the development and implementation of new models of care for dietetics services to ensure the right care is delivered at the right time to every child and family.

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  • Nikhil Thapar

    Nikhil Thapar PhD, MD

    Nikhil Thapar is Director of the Gastroenterology, Hepatology and Liver Transplant service at Queensland Children’s Hospital, Brisbane, Australia where he leads a specialist statewide multidisciplinary clinical service for children with gastrointestinal motility and functional disorders. He was Academic Lead for Paediatric Gastroenterology and head of the Neurogastroenterology and Motility service at Great Ormond Street Hospital and University College London Great Ormond Street Institute of Child Health (London, UK).

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