IPFDC Pre-Conference (Sold Out)

April 28, 2021 9:00 am

Joan Arvedson, PhD, CCC-SLP, BCS-S, ASHA Fellow, Cuyler Romeo, M.O.T., OTR, SCFES, CLC and Jennifer Wilson, M.A. CCC-SLP, BCS-S will lead attendees through multiple case studies while gathering insight from a live family panel. Attendees will have the opportunity to engage with multiple disciplines, families of children with pediatric feeding disorder (PFD) and content experts as we explore evidence-based assessment and management of PFD.

Speakers

  • Joan Arvedson, PhD, CCC-SLP, BCS-S

    Joan C. Arvedson, PhD, CCC/SLP, BCS-S, is Program Coordinator of Feeding and Swallowing Services at Children’s Wisconsin – Milwaukee. She is Clinical Professor in Division of Gastroenterology, Department of Pediatrics, Medical College of Wisconsin. She has 3 books in publication and numerous articles in peer reviewed journals. Dr. Arvedson is an internationally recognized expert in pediatric dysphagia. She was awarded Honors of ASHA in 2016 and is an ASHA Fellow, also Honors of NYSLHA. She was awarded Lifetime Achievement Award from Wisconsin Speech and Hearing Association (WSHA) in 2020.

    Financial Disclosures: Receives royalty from Plural Publishing; Receives royalty from Northern Speech Services; Receives royalty from Medbridge, Inc; Recevied honoraria from Education  Resources, Inc

    Non-financial Disclosures: Volunteers and consults for Feeding Matters, Inc; Co-Chair of Pediatric Special Interest Group for Dysphagia Resource Society

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  • Lisa Ceballos

    It wasn’t until Lisa Ceballos had her second son, that she learned about the world of Pediatric Feeding Disorder. Javier, her first son, was a normal eater and her youngest son, Sidney was born full term and without complications. When Sidney was around 6 months old, he stopped gaining weight, but it wasn’t until he was 3 years old that the Ceballos family had a better picture of what might be behind Sidney’s poor nutrition. The family spent 2 and a half years of numerous visits to medical specialists, a litany of tests with normal results, n-g tubes, and months of feeding therapy before discovering that Sidney had a long list of food allergies and an inflammatory condition called Eosinophilic Esophagitis. A strict food elimination diet, hypoallergenic feeds through a g-tube, and regular endoscopic exams and a connected team of Allergists, pediatric GI specialists, and Psychologist were finally able to help Sidney get on the road to gaining weight. After 6 years of supplemental feeding through the g-tube, Lisa helped Sidney finally transition off tube feeding.

    Financial Disclosures: Nothing to disclose

    Nonfinancial Disclosures: Member of the Feeding Matters Auxiliary Board; Feeding Matters volunteer family coach

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  • Brandon Benzing

    Brandon Benzing is a father of three children, his eldest son (12) and youngest daughter (4) were both born at 28 weeks, each weighing 1lb 14oz. Brandon and his wife Paula encountered pediatric feeding disorders with both of their premature children. Their youngest suffered more with PFD and has lived her early life being a tubie. His experience from raising three children with different feeding needs has given him perspective on the unique challenges for each individual child. He values sharing his journey’s story and the hope it brings to parents facing similar obstacles.

    Financial Disclosures: Nothing to disclose

    Nonfinancial Disclosures: Nothing to disclose

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  • Tessa Gonzalez

    Tessa Gonzalez is mom to two girls, ages 2 and 4. Her older daughter has a rare genetic disorder that contributed to PFD. Her daughter has had a long journey through the world of PFD including a diagnosis of failure to thrive, g-tube placement, years of feeding therapy, and most recently has successfully transitioned to fully oral eating with fluid supplementation by g-tube. Tessa has been a volunteer with Feeding Matters for nearly a year and enjoys helping families navigate their way through the often confusing and difficult world of PFD. She is a fierce advocate for her daughter and loves helping other families advocate for their loved ones.

    Financial Disclosures: Contractor for SC Pediatric Alliance and The Therapy Place

    Non-financial Disclosures: Fellow at the American Academy of Pediatrics; Volunteer for Feeding Matters as a family coach; Volunteer speaker for Real Food Blends

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  • Cuyler Romeo, M.O.T., OTR, SCFES, CLC

    Occupational Therapist and Pediatric Feeding Specialist Cuyler Romeo’s extensive leadership and clinical experience are instrumental in the execution and management of Feeding Matters’ strategic initiatives. In partnership with the CEO, Jaclyn Pederson, Cuyler collaborates with constituents to identify, track, and assess innovative approaches to the PFD system of care. Cuyler also facilitates strategic partnerships with select professional associations including the American Occupational Therapy Association (AOTA). Prior to joining Feeding Matters, Cuyler served as a founding partner of Mealtime Connections, LLC, and gained valuable insight on funding trends and industry implications as the director of clinical innovations at Therapy 2000. She is currently a treating clinician in Banner-University Medical Center’s NICU and works to advance the feeding skill domain by facilitating AOTA’s mealtime Occupations: Feeding, Eating, and Swallowing Community of Practice.

    Financial Disclosures: Receives a salary from Banner University Medical Center Tucson and Feeding Matters

    Nonfinancial Disclosures: Serves as a member of AOTA, ArizOTA, IAPFS and IPAA

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  • Stephanie Stillman

    Stephanie Stillman is a mom of two girls (ages 9 and 6) who both have been affected by PFD. She is a member of the Feeding Matters Auxiliary Board as well as a volunteer and fundraiser for the FD Foundation, Phoenix Children's Hospital, JDRF, JNF, and the Solel Preschool. Prior to becoming a mom of two, Stillman had her own business as a personal Pilates trainer and was Arizona Director of ACT Today, a foundation giving grants to children with Autism to receive much needed therapies.

    Financial Disclosures: Nothing to disclose

    Nonfinancial Disclosures: Volunteer with Feeding Matters

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  • Jennifer Wilson, M.A. CCC-SLP, BCS-S

    Jennifer Wilson has been a Speech-Language Pathologist for over 25 years, working primarily with pediatrics in medical settings.  She received her M.A. from University of Memphis in 1993 and began gaining  experience through working for two Children’s Hospital systems, owning a private practice for 12 years and  working for the past 5 years at the University of Tennessee Health Science Center as an Assistant Professor. She specializes in the area of Pediatric Dysphagia, educating  graduates clinically and academically, and providing community education on feeding and swallowing disorders in children.  She also serves on the Admissions Board and as a Internship Coordinator with the University of Tennessee FUTURE program, a post-secondary education program for young adults with intellectual and developmental disabilities. Additionally, she serves as the President of TAASLP (Tennessee Association of Audiologists and Speech Language Pathologists), a Site Visitor for the Council of Academic Accreditation, and is on the Member Advisory Board for the ASHA Alternative Payment Models Committee.

    Financial Disclosures: Receives a salary from UTHSC

    Nonfinancial Disclosures: Member of ASHA and TAASLP

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  • ABDA Brand Block