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A lack of longitudinal, evidence-based data and the diverse nature of pediatric feeding disorder (PFD) have often been cited as barriers to understanding the individualized needs of children with PFD. Feeding Matters and the PFD Alliance strive to identify, fund, and facilitate research and clinical studies that address these issues and move the field from utilizing practice-based evidence to relying on evidence-based practice.

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Economic Impact Study

Over the years, families have reported spending hundreds, sometimes thousands, of dollars on PFD-related expenses that are not covered or reimbursed by insurance. To fully and accurately capture the financial burden related to pediatric feeding disorder, Feeding Matters collaborated with the market research firm FirstEval to develop and manage an economic impact survey.
The results of the collaboration showed that that parents endure more than just emotional stress when their child has PFD. Finances continue to be the top stressor, with families managing pediatric feeding disorder spending money on extra childcare, specialty foods, and travel to therapists to receive optimal care. These significant expenditures incurred by the families navigating PFD are not well understood by the reimbursement community, creating a barrier to coverage by most insurance companies.
The data collected from the economic impact survey informs healthcare professionals and insurance companies through the Advocacy and Early Intervention Model (AIM).

The Infant and Child Feeding Questionnaire (ICFQ)

Understanding that the early detection and treatment of pediatric feeding disorder is critical to short- and long-term success, in September 2008, the PFD Alliance identified the need for an early identification and engagement tool that could easily be integrated into a physician’s practice.
Developed by world-renowned experts in PFD, the Infant and Child Feeding Questionnaire is an interactive tool that identifies red flags in typical feeding development to enhance communication between healthcare professionals and families. The questionnaire is designed to promote the early identification of pediatric feeding disorder, thus prompting earlier intervention and referral. While the ICFQ is currently undergoing research to determine a subset of questions to become a validated screening instrument, the pilot research shows promise for identifying a potential pediatric feeding disorder.

Read the paper in the Journal of Pediatric Gastroenterology and Nutrition ››

Use the questionnaire to identify a patient for futher evaluation and assessment ››