Julian, Age 2

Location: Arizona, United States

Challenges:Feeding difficulties, NG feeding tube

Formal PFD Diagnosis: Yes

Age of Formal PFD Diagnosis: 2.5

Type of Insurance: United Health Care

Percent of monthly budget that goes to feeding difficulties: 50

Does insurance cover any / all medical costs? Pay out of pocket for Insurance Clear, huge copay for feeding and speech therapy.


Was working out with a group of other moms and at the end of the workout the mother's started talking and complaining how they wished their children would eat healthier. I got in my car and started crying, because I just want my CHILD to eat. This is a struggle parents of PFD go through on a daily basis.

Just wanted to share this experience as other PFD families go through this on a regular basis.

What having coverage could mean

If having better medical coverage it would make a difference.