Family Advisory Council

Family Advisory Council

Garrett Barnes

Garrett and his husband of 18 years are raising three amazing daughters in Utah. Determined to assist Lucy, their eldest, he spends time outside of his career in finance working to educate, bring awareness and attention for pediatric feeding disorders. With zero medical diagnosis and no explanation as to why his daughter will not eat by mouth, his family is committed to a Homemade Blended Diet fed via G Tube while they pursue therapy with Lucy. She loves to eat chocolate pudding, Nutella, Banana Smoothie, suck on countless Costco Sized bags full of pretzels and makes progress each day toward her goal of consuming her meals by mouth. Their twins Alice and Ivy provide positive support as they are enthusiastic mouth eaters and cheer Lucy on whenever there is a victory. Garrett serves as board member for several healthcare related organizations as well as for an Independent School in Utah who's philosophy is to develop young minds to heal the world.

More » Less

Lucia Cota

My name is Lucia Cota, I've been a stay at home mom for the last 5 years and recently started working from home empowering families to start using their constitutional rights and also protect their identities.  I was invited to join the Parent Council from Feeding Matters. This was an opportunity I coudn't pass us because I love helping families and especially those who have had a complicated journey with their children. I have a son with multiple medical challenges and one of them is feeding related. It has been a difficult runway and since we share similar struggles, I want to help parents to be the best advocates in their kid's journeys.

More » Less

Cathy Humphrey

Cathy is married to Manolis and mom to Maria, a sweet, beautiful 11-year old who was born with hydrocephalus. Feeding is just one of Maria’s many challenges. She had an NG tube during her first year, then again for a few months when she was 7, after a big surgery, which is when we decided to have a G-tube placed. Now she eats pureed and soft foods, only using the tube for liquids and medicines. Cathy works full time for the Bureau of Land Management, has been a volunteer for Feeding Matters and Raising Special Kids for several years, and was recently appointed to Arizona’s Special Education Advisory Panel.

More » Less

Hayley Rothblum

Hayley Rothblum is a medical office executive and mother to two children who experienced feeding issues. Hayley earned her undergraduate degree in linguistics and she is acutely aware of the need to help parents and medical providers work together. Hayley wants to connect parents with the information they need to manage feeding issues. Hayley experienced first-hand the power of becoming informed to work with healthcare providers to advocate on behalf of their children. Hayley’s professional and family experiences have combined to help her understand a parent’s vital role in the care continuum.

More » Less

Renee Uzelac

Renee is the mother of a son and wife of Bob. She has been a supporter of Feeding Matters as a parent mentor for years. Her background is in hospital administration and patient support. The last 6 years she has been devoted to the care of her son who has experienced eating/feeding issues at the introduction of mastication. This prompted her, at the suggestion of the director of a feeding clinic her son attended, to get involved with Feeding Matters and help parents navigate through the world of challenges with feeding and eating.

More » Less