Holiday Tips from our PFD Families

Published by Feeding Matters on Nov 10, 2021

For families of a child with PFD, holidays can look different. We gathered tips from our families that have helped make the holidays easier for their children. We try toRead full post…

From our 2021 Community Event Honorary Chairs

Published by Feeding Matters on Oct 12, 2021

Philip John Calihan IV, “PJ” was born August 30, 2012, and was 8 pounds 6 ounces of perfection. Just over two weeks early, he was enormous. Big sister Claire wasRead full post…

The first PFD diagnosis in the US

Published by Feeding Matters on Oct 08, 2021

Families of children with pediatric feeding disorder around the United States have long struggled to advocate and explain their children’s struggle in part because there has never been a diagnosticRead full post…

Stories of Resilience

Published by Feeding Matters on Nov 02, 2020

In celebration of our Community Virtual Event, we will be sharing Stories of Resilience on our Facebook and Instagram accounts. Follow along each day and be inspired by the courageousRead full post…

One Family’s COVID-19 Journey

Published by Dustin Bowers on Jun 30, 2020

The COVID-19 pandemic has tested resiliency worldwide, pushing people and entire societies far beyond anything they had anticipated. We who have children with pediatric feeding disorder already know what itRead full post…

Shine The Light: Stephanie and Brian

Published by Stephanie Sanstead on Feb 14, 2020

I see joy all over this house. I see it framed in photos, affixed to refrigerator doors and spilling out of toy boxes. The house belongs to Stephanie and BrianRead full post…

Poems and a Loss of Words

Published by Jeremiah Blue on Oct 29, 2019

“I made myself a snowball,” Sandra presents to her son Mason, rehearsing a Shel Silverstein poem he will recite for his third-grade class. Standing as tall as he can atRead full post…

Back to School Time!

Published by Alba Chester on Aug 20, 2019

Where did summer go? As store aisles go from patriotic flags to notebooks and pencils my stress level as a mother of three children with various Pediatric Feeding Disorders startsRead full post…

Camp Responsibilities: Establishing Protocols to Prevent and Respond to Food-Allergic Reactions

Published by Food Allergy Research & Education (FARE) on Jun 25, 2019

It’s estimated that each year, more than 11 million children and adults attend a camp. Throughout the U.S., there are more than 12,000 day and summer camps, run by nonprofitRead full post…

Summer Travel Tips for Children with Special Needs

Published by Cathy Humphrey on Jun 05, 2019

With Memorial Day behind us, many families are setting their sights on summer vacations. When you travel with children (or adults!) with special feeding or other healthcare needs, here areRead full post…

NICU Graduates: On Track for Ongoing Feeding Success!

Published by Allyson Goodwyn-Craine on May 28, 2019

This article is reposted with permission from ASHA’s Leader Live blog and shares Sunnyside Medical Center’s three tracks to support feeding skills progression following the NICU. As each little feederRead full post…

Register Now: 2019 Virtual Town Halls

Published by Feeding Matters on May 21, 2019

Now that Feeding Matters’ PFD Alliance and thought leaders have convened at the 2019 International PFD Conference, the Feeding Matters’ Strategic Plan is available for public viewing. We maintain ourRead full post…

Can you say EOSINOPHILIC? (E-O-sin-O-fill-ik)

Published by Feeding Matters on May 17, 2019

The body’s immune system serves as its own internal ambulance, responding to crisis and triaging needs as they arise. Most times that rapid response works out just fine. But sometimes,Read full post…

FAACT(S) About Food Allergies

Published by Feeding Matters on Apr 26, 2019

Millions of people live with food allergies and the guessing game that comes with diagnosing them and avoiding the foods that trigger a reaction. It’s a well-documented struggle for adultsRead full post…

My Journey with Mikarah

Published by djennings on Nov 16, 2018

I am a mother of four children. My youngest child, Mikarah, was diagnosed with feeding difficulties, better known as failure to thrive, at about 8 weeks of age. She wasRead full post…

Mealtimes: No Magic Required

Published by Growing Independent Eaters on Oct 24, 2018

When families begin the process of weaning from feeding tubes at home, a paralysis can take place, where you feel a lot of pressure to create magical mealtimes that willRead full post…